Can a testamentary trust be used to provide for a disabled child?

Yes, a testamentary trust can be a powerful tool to provide for a disabled child, offering continued care and financial security long after their parents are gone. This type of trust is created within a will and only comes into effect upon the testator’s death, offering a flexible way to manage assets for a beneficiary with special needs. It allows parents to specify exactly how and when funds should be used, ensuring the child’s needs are met without disqualifying them from vital government benefits like Supplemental Security Income (SSI) and Medicaid. Approximately 1 in 4 adults in the United States have some type of disability, highlighting the significant need for specialized estate planning solutions.

What are the benefits of a special needs trust?

A properly drafted special needs trust, often a type of testamentary trust, is designed to supplement, not supplant, public benefits. This is crucial because direct gifts or inheritances can disqualify a disabled individual from receiving essential government assistance. The trust can cover expenses not covered by these benefits, such as therapies, specialized equipment, recreational activities, and even personal care. According to the National Disability Rights Network, families often struggle to navigate the complexities of maintaining eligibility for benefits while still providing a good quality of life for their loved ones. “It’s about enhancing their life, not replacing the safety net that already exists,” explains Ted Cook, an Estate Planning Attorney in San Diego.

How does a testamentary trust differ from a living trust for a disabled child?

While both testamentary and living trusts can benefit a disabled child, they function differently. A living trust is created and funded during the parent’s lifetime, allowing for immediate management of assets and potential incapacity planning. A testamentary trust, on the other hand, is established through a will and only becomes active after death. This means the assets are subject to probate, which can be a time-consuming and costly process. However, a testamentary trust offers flexibility, as it allows parents to adjust their estate plan based on changing circumstances or evolving needs of their child. Approximately 60% of adults do not have a will, meaning a significant number of disabled children may not have the benefit of a carefully planned estate.

I remember working with a family where the parents hadn’t established any formal trust for their adult son with Down syndrome. Upon their unexpected passing, the son inherited a substantial sum of money directly. Within months, he lost his SSI benefits, his housing assistance was threatened, and the family struggled to manage the funds responsibly. They were overwhelmed and stressed, wishing they had taken the time to create a special needs trust that would have protected both their son’s financial well-being and his access to essential services. It was a heartbreaking situation that underscored the critical importance of proactive estate planning.

Can I control how the trust funds are used for my child?

Absolutely. One of the key advantages of a testamentary trust is the level of control it provides. You can specify exactly how the funds should be used, outlining permissible expenses, designating a trustee to manage the assets, and establishing guidelines for distributions. This ensures your child’s needs are met according to your wishes and values. It’s common to appoint a trusted family member, friend, or professional trustee with experience in special needs planning. “The goal is to create a legacy of care and security for your child,” says Ted Cook, “and a well-drafted trust is the foundation for achieving that.” I recall a different client, a single mother, who meticulously planned a testamentary trust for her daughter with cerebral palsy. She outlined specific therapies, educational opportunities, and recreational activities she wanted her daughter to have access to. Years after her passing, her daughter thrived, benefiting from the trust’s resources and the mother’s foresight. It was a beautiful example of how a thoughtful estate plan can transform a child’s life, ensuring her continued growth and happiness.

It’s important to remember that approximately 11.1% of Americans have a disability, and proper planning can make all the difference in ensuring their long-term care and well-being.


Who Is Ted Cook at Point Loma Estate Planning Law, APC.:

Point Loma Estate Planning Law, APC.

2305 Historic Decatur Rd Suite 100, San Diego CA. 92106

(619) 550-7437

Map To Point Loma Estate Planning Law, APC, an estate planning lawyer: https://maps.app.goo.gl/JiHkjNg9VFGA44tf9


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